Registered Nurse , RN Care Manager-Leukodystrophy Center for Excellence

Philadelphia, PA, US, 19104

​Location: LOC_BUERGER-Buerger Center Ambulatory Care 

Req ID: 224636

Shift: Any

Employment Status: Regular - Full Time 


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CHOP is committed to building an inclusive culture where employees feel a sense of belonging, connection, and community within their workplace. We are a team dedicated to fostering an environment that allows for all to be their authentic selves. We are focused on attracting, cultivating, and retaining diverse talent who can help us deliver on our mission to be a world leader in the advancement of healthcare for children. 

We strongly encourage all candidates of diverse backgrounds and lived experiences to apply. 

Job Summary

This is a Care Manager position for our Leukodystropy Center here at CHOP.

Leukodystrophies are a group of genetic disorders that lead to loss of white matter in the central nervous system, leading to progressive weakness, loss of coordination, regression of development, and often feeding issues, scoliosis, and seating issues. Care for these children and their families requires a multidisciplinary approach, and our care team are highly trained experts who work in a highly collaborative and energized shared care model. We are looking to high an complex care nurse manager who welcomes a new challenge, who enjoys caring for children with multifaced medical needs, and who thrives in a dynamic field. Advances in gene and cell-based therapies brings hope that these new therapies will greatly improve the outcomes and lives of these children.

 No weekend or holiday commitments- some portion remote

Job Responsibilities


  • General care management responsibilities:
    • Identify patients in need of care management and maintain a patient database.
    • Provide care management services to an assigned panel or designated population of patients and their families.
    • Develop and maintain patient-centered, intra-disciplinary, longitudinal plans of care and monitor patients’ progress toward care plan goals.
    • Advocate for patients and families and promote communication and collaboration to keep all care team care members informed of patients’ care needs and to ensure that patients access and benefit maximally from available health care resources.
    • Facilitate transitions across care settings.
    • Assist patients and families with access to health care services as needed, including collaboration with payers.
    • Teach, coach and counsel patients and their families to build independence and skills for self-management.
    • Monitor and evaluate patients’ outcomes and communicate outcomes to health care teams.
    • Use information systems to document and track care management interventions
    • Transfer patients to higher or lower levels of care management support as appropriate.
    • Collaborates with patient and family health care providers and agencies using a multidisciplinary and holistic approach to help the patient and family set realistic and achievable goals to achieve the desired outcomes.
    • Utilizes professional and community knowledge and influence to obtain resources in the most cost-effective manner to best meet the patient's developmental, physical, psychosocial and financial needs.
    • Researches, selects and promotes adaptation of best practice findings to ensure quality patient care and optimal outcomes.
    • Adapts behavior as needed to the specific patient population, including but not limited to respect for privacy, method of introduction to the patient, adapting explanation of services or procedures to be performed, requesting permissions and communication style.

Job Responsibilities (Continued)

Practice (continued)

  • Outpatient care management responsibilities:
    • Communicate regularly with PCPs and relevant specialists regarding acute and chronic patient care issues and intra-disciplinary care plans.
    • Review medical records prior to encounters and participate in outpatient visits as necessary to assist in the development and updating of care plans.
    • Participate in care team meetings to discuss active clinical issues and progress toward goals.
    • Establish routine communication plans and communicate regularly with patients and families to assess ongoing care needs and to facilitate proactive care planning, including regular telephone contact.
    • Serve as a liaison with insurers/payers, review resource utilization and eligibility and identify the need for and facilitate obtaining additional health insurance services.
    • Complete letters of medical necessity, referrals and prior authorizations as needed.
    • Collaborate with home nursing companies and Durable Medical Equipment (DME) providers.
    • Identify and develop relationships with community resources to support patient’s needs and makes referrals when appropriate.
  • Inpatient care management responsibilities:
    • Respond to referrals from inpatient teams, primary care providers or referring hospitals/facilities prior to discharge, and provide consultation on enrollment in longitudinal care management services.
    • Establish relationships with patients who are newly enrolled in care management services prior to discharge and collaborate with the inpatient teams regarding discharge plans and anticipated outpatient care needs.
    • Serve as a longitudinal resource for inpatient teams to obtain relevant information and updates about patients during admissions, and collaborate with inpatient teams regarding outpatient care needs and discharge plans.
    • Facilitate scheduling post-discharge follow up telephone encounters and visits with the PCPs and specialists.
    • Coordinate plans for follow up visits with care providers and for laboratory and diagnostic studies after discharge.
    • Attend inpatient family meetings and care conferences when necessary to integrate inpatient care with patients’ longitudinal, intra-disciplinary care plans.
  • Emergency Department care management responsibilities.
    • Serve as a resource to Emergency Department providers for information about patients that will inform the Emergency Department plan of care.

General registered nursing duties (including but not limited to);

  • Obtain and document patients’ histories.
  • Perform and document physical assessments.
  • Conduct telephone triage and refer patients to appropriate services.
  • Perform and/or interpret basic laboratory tests.

Job Responsibilities (Continued)

Professionalism and Leadership

  • Assist with surveys and other data collection activities to measure the effectiveness of care management interventions.
  • Support strategies and changes as needed to improve the care management program.
  • Serve as an institutional expert on care coordination and transition management.
  • Enhances professional growth and development through participation in educational programs, current literature, in-service meetings and workshops.


  • Read, analyze and synthesize nursing and other scholarly articles and research studies and share knowledge with colleagues.
  • With assistance, apply research findings to clinical practice.
  • Seek opportunities to participate in research studies.


  • Identify learning needs of self and others and assists in the development of a learning plan.
  • Apply education and training from departmental in-services and external sources to unit practices to enhance Nursing practice.
  • Participate in the development/presentation of education programs.
  • Demonstrate health care informatics competency in order to manage patient care, outcome data and current and emerging health care technology.

Resource Management

  • Participate in promoting quality, efficient and cost-effective care.
  • Monitor own usage of supplies and equipment/identify opportunities for improvement and makes recommendations.
  • Manage own time to accomplish direct/indirect care in a cost-efficient manner.

Other Responsibilities

  • Adheres to established departmental policies, procedures, and objectives.
  • Maintains established department/hospital/system policies and procedures, directives, safety, environmental and infection control standards appropriate to this position.
  • Demonstrates a courteous and professional manner through interactions with internal and external customers.
  • Exemplifies a professional image in appearance, manner and presentation.
  • Engages in self-performance appraisal, identifying areas of strength as well as areas for professional development.

Required Licenses, Certifications, Registrations

Registered Nurse (Pennsylvania) - Pennsylvania State Licensing Board (upon hire)
Nursing Temporary Practice Permit (Pennsylvania) - Pennsylvania State Licensing Board (upon hire)
Registered Nurse (New Jersey) - New Jersey State Licensing Board (upon hire)
Nursing Temporary Practice Permit (New Jersey) - New Jersey State Licensing Board (upon hire)
Certification in Care Coordination and Transition Management (CCTM) - American Academy Ambulatory Care Nursing (AAACN) (within 36 months)
Current Basic Life Support certification issued through an organization that requires hands-on instructor lead psychomotor skills verification (ex. American Heart Association or Red Cross)

Required Education and Experience

Required Education: Bachelor's Degree in Nursing

Required Experience: At least five (5) years of nursing experience required. 

Preferred Education, Experience & Cert/Lic

Preferred Experience: 

  • Pediatric experience
  • Nursing experience with a combination of outpatient and inpatient experience

Additional Technical Requirements

  • Computer Competency
  • Navigation and basic search functions of the Internet using Internet Explorer
  • Use of Outlook 2007 email, opening of attachments, attaching new files to emails and saving attached files to computer
  • Basic use of computers, printers, monitors, patient care devices, and Fax machines
  • Information Literacy
  • Use of Internet and Intranet to look up basic electronic resources for practice
  • Ability to find and print Patient Family Education Documents
  • Information Management Literacy
  • Navigation of electronic health information records and ability to review specific patient data in a clinical information system
  • Understanding of policies and procedures around timeliness of care, use of a clinical information system and support of safe nursing practice
  • Ability to discuss data presented in charts and tables
  • Discuss the responsibilities of each user of an electronic record related to confidentiality and privacy
  • Coordination of patient care information in a fragmented environment where there is partially online and partially paper references

To carry out its mission, CHOP is committed to supporting the health of our patients, families, workforce, and global community.  As a condition of employment, professionals working onsite—at any CHOP location, for any portion of time—must be vaccinated for COVID-19. Learn more. 

CHOP also requires employees who work in patient care buildings to receive an annual influenza vaccine. Employees may request exemptions for valid religious and medical reasons.  Start dates may be delayed until candidates are immunized or exemption requests are reviewed.  

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